In this section you will find the list of Clinical Practice Guidelines (CPGs) and other Clinical Decision Making Tools (CDMTs) compiled and classified on Quality Domains. Please go to Guidelines and other CDMTs Section to see the methodology followed.
*Please note that classification for CPGs and other CDMTs on Bleeding and Coagulation disorders and Lymphoid malignances on Quality Domains is ongoing. Documents will be searchable soon.
Subnetwork: Red blood cell defects
Disease group/s: Hereditary spherocytosis
Scope and Purpose: 5. Diagnosis and treatment
Patients' involvement?: Yes
Rigour of development: A - Evidence and consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/22055020
Comment:
2011 update
Subnetwork: Red blood cell defects
Disease group/s: Primary inherited erythrocytosis / Congenital polycythemia
Scope and Purpose: 5. Diagnosis and treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Subnetwork: Red blood cell defects
Disease group/s: Rare constitutional hemolytic anemia due to an enzyme disorder (Other than PKD)
Scope and Purpose: 5. Diagnosis and treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 6. Prevention, diagnosis, treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/24672826
Comment:
2nd Edition
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 6. Prevention, diagnosis, treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/25610943
Comment:
3rd Edition (2014)
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 1. Prevention
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/24672827
Comment:
Vol 1, 2nd Edition (2013)
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 4. Prevention and diagnosis
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/24672828
Comment:
Vol. 2: Laboratory Protocols (2012)
Subnetwork: Red blood cell defects
Disease group/s: Hereditary elliptocytosis, Hereditary spherocytosis, Hereditary stomatocytosis
Scope and Purpose: 2. Diagnosis
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Subnetwork: Bone marrow failure, Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Congenital dyserythropoietic anemia, Hereditary elliptocytosis, Hereditary spherocytosis, Hereditary stomatocytosis, Rare constitutional hemolytic anemia due to pyruvate kinase deficiency, Rare constitutional hemolytic anemia due to an enzyme disorder (Other than PKD), Sickle cell disease and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: A - Evidence and consensus based
Subnetwork: Red blood cell defects
Disease group/s: Rare constitutional hemolytic anemia due to pyruvate kinase deficiency
Scope and Purpose: 2. Diagnosis
Patients' involvement?: No
Rigour of development: B - Consensus based
Subnetwork: Red blood cell defects
Disease group/s: Rare constitutional hemolytic anemia due to pyruvate kinase deficiency
Scope and Purpose: 2. Diagnosis
Patients' involvement?: No
Rigour of development: B - Consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/30358897
Comment:
2019, «Recommendation written by ERN-EuroBloodNet»
Subnetwork: Red blood cell defects
Disease group/s: Sickle cell disease and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: B - Consensus based
Link: https://www.nhlbi.nih.gov/health-topics/evidence-based-management-sickle-cell-disease
Comment:
2014
Subnetwork: Red blood cell defects
Disease group/s: Sickle cell disease and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: B - Consensus based
Subnetwork: Red blood cell defects
Disease group/s: Sickle cell disease and related diseases
Scope and Purpose: 4. Prevention and diagnosis
Patients' involvement?: No
Rigour of development: B - Consensus based
Link: https://pubmed.ncbi.nlm.nih.gov/30334577/
Comment:
«Recommendation written by ERN-EuroBloodNet»
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: Yes
Rigour of development: B - Consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 2. Diagnosis
Patients' involvement?: No
Rigour of development: B - Consensus based
Comment:
Ed. 2016
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: B - Consensus based
Link: https://www.ncbi.nlm.nih.gov/pubmed/24672825
Comment:
Ed. 2012
Subnetwork: Red blood cell defects
Disease group/s: Hemoglobinopathy (Other than THAL and SCD), Rare constitutional hemolytic anemia due to an enzyme disorder (Other than PKD)
Scope and Purpose: 5. Diagnosis and treatment
Rigour of development: B - Consensus based
Link: https://pubmed.ncbi.nlm.nih.gov/34467556/
Comment:
«Recommendation written by ERN-EuroBloodNet»
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 4. Prevention and diagnosis
Patients' involvement?: No
Rigour of development: B - Consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 4. Prevention and diagnosis
Patients' involvement?: Yes
Rigour of development: B - Consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 1. Prevention
Patients' involvement?: No
Rigour of development: B - Consensus based
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases, Sickle cell disease and related diseases
Scope and Purpose: 1. Prevention
Patients' involvement?: No
Rigour of development: B - Consensus based
Comment:
Antenatal Laboratory Handbook SCD Thal
Subnetwork: Red blood cell defects
Disease group/s: Alpha- thalassaemia diseases, Beta-thalassemia and related diseases
Scope and Purpose: 3. Treatment
Patients' involvement?: No
Rigour of development: C - Expert opinion
