ERN-EuroBloodNet
 
Newsletter - June 2022
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
ERN-EuroBloodNet at the ERICA 2nd General Assembly 20-22 June 2022, Bologna, Italy
 
 

The ERN-EuroBloodNet is co-leader of the ERICA WP3, Patient-Centered Research of the European Rare Disease Research Coordination and Support Action (ERICA).

 
 
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Clinical Patient Management System for Virtual diagnosis
 
 

Be part of the CPMS experts to obtain and provide support to the diagnosis and treatment of rare hematological patients.

 
 
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Do not miss the 12th edition of the International Symposium on Hodgkin Lymphoma!
 
 

The hybrid conference will be held in Cologne, Germany, from October 22nd to 24th, 2022.

 
 
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Update on Hemochromatosis: “Hemochromatosis classification: update and recommendations by the BIOIRON Society”
 

The manuscript of the working group of the International Society for the Study of Iron in Biology and Medicine (BIOIRON Society), coordinated by Domenico Girelli, proposes a new definition and classification of Hemochromatosis (HC).They are intended to be of practical help even for nonexpert clinicians, avoiding delays in diagnosis and treatment, whenever a detailed molecular characterization of HC is not readily available.

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The EJP RD Innovation Management Toolbox (IMT) is now available!
 

The IMT, the library of translational medicine resources on Rare Diseases, aims to help researchers to overview the communities that are available to help them.

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The EJP RD webinar on Composite endpoints including patient relevant endpoints (Quality of Life) is now available!
 

Visit the EJP RD YouTube channel to watch it!

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Do not miss the EJP RD second paediatric expert patients training workshop!
 

The event will take place in Lyon, France on July 12-15 at the iCAN Summit.

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ERN-EuroBloodNet and the people living with SCD is celebrating the World Sickle Cell Day 2022!
 

This year together with people living with SCD we created those postcards with the things SCD has taught them about themselves, others or life in general - with an emphasis on positivity. Let's celebrate this day!

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