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Congratulations to the winners of EURORDIS Black Pearl Awards 2020!

2019-12-12
Congratulations to the winners of EURORDIS Black Pearl Awards 2020!

The recipients of the EURORDIS Black Pearl Awards 2020 will be awarded at the official ceremony at the Hotel le Plaza Brussels on 18 February.

The EURORDIS Black Pearl Awards are presented to the stars of the rare disease community - patient advocates, organisations, policy makers, scientists, companies and media - for their major achievements and their outstanding commitment to the rare disease cause.

The recipients of the EURORDIS Black Pearl Awards 2020 will be awarded at the official ceremony at the Hotel le Plaza Brussels on 18 February. Winners announced have been:

  • EURORDIS Young Patient Advocate: Jana Popova (Bulgaria)
  • EURORDIS European Rare Disease Leadership Award: Jana Popova (Bulgaria)
  • EURORDIS Policy Maker Award: Dr. Vytenis Andriukaitis (Lithuania)
  • EURORDIS Scientific Award: Prof. Annemieke Aartsma-Rus (The Netherlands)
  • EURORDIS Volunteer Awards: Claudia Crocione (Italy)
  • EURORDIS Company Award for Innovation: Healx (UK)
  • EURORDIS Company Award for Patient Engagement: Boehringer Ingelheim (Germany)
  • EURORDIS Visual and Audio Media Award: Tomasz Śliwiński & Magda Hueckel (Poland)
  • EURORDIS Written Media Award: Dr. Lisa Sanders (USA)
  • Holistic Care Award: EB Haus (Austria)
  • EURORDIS Members Award: ALAN Maladies Rares Luxembourg
  • Company Award for Health Technology: Tobea (Greece)

Congratulations to all!

Registration for attendance to the event is not yet open, but keep updated at the EURORDIS Black Pearl Evening official website!


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